We didn’t have any appointments today, and Caleb was very excited! Tomorrow starts our regular routine of Monday-Friday radiation treatments. Although tomorrow is just a simulation, they will still sedate him so they can do a full run through of his treatment plan. I won’t pretend to know all that goes into the planning of radiation treatments, but I know it takes a whole team of people to set up Caleb’s custom plan, and get the proton beams so targeted and precise. So this is what they will practice tomorrow, and then the actual radiation treatments will begin on Wednesday.
When he starts his radiation treatments, he will not be able to eat breakfast Monday-Friday because of the sedation. So we went big this morning!!! Pancakes, sausage, scrambled eggs, a biscuit, AND the McDonald’s play place of course! Caleb had so much fun and I enjoyed watching him play.
After breakfast we went to Hobby Lobby. I needed a few art supplies and I love Hobby Lobby so I was excited that I found one nearby. Every year around this time I get so excited for Halloween, Thanksgiving, and Christmas. I LOVE holidays! And I love decorating for the holidays! Only I was a little sad while browsing the holiday decor today because I know this year is going to be different. We will be in the middle of a chemo cycle this Christmas and I just don’t know what that’s going to be like yet. So, I guess that’s the strange thing about being in the position that I am in. There are some moments you have it all together, and then other times that your emotions hit you when you least expect it… even at Hobby Lobby!
For those new in following our journey, we were in the middle of building a brand new house when we found out about Caleb’s brain tumor. And although it’s not important compared to Caleb’s health, we are sad that we aren’t in Florida to watch the final stages of the build. I walked around the home decor section dreaming of the way I pictured our new house… cozy, comfortable, warm, inviting… But as I walked the aisles there were two pictures that stood out to me. One was the word hope. HOPE. It’s what St. Jude gave us that no other hospital or doctor did. And also the bible verse in the second picture. That verse just keeps popping up in my life and grabbing my attention. It’s hard to ignore certain things, so I took that as a comforting sign from above, and decided it was time to head back home.
Caleb also decided to play with this globe on our way out… I just loved his curiosity of it, and the way he looks in this picture. You have the whole world at your fingertips Caleb, yes you do, and I know you are going to make your mark on it.
So proud of all of you and thank you for these amazing blogs! They truly feed the soul! Continued love and prayers on your journey! It will be extra special when you see your home in all its finished glory waiting your return! Love you all and much,much,love to Caleb!💙💙
I love your thoughts on this day! Caleb is quite a boy because he has quite a special mom! Love you all and my thoughts and prayers will be with you throughout this journey!
You are amazing just like your mom! Your sentiments today are all inspiring. 💕💕🙏🙏
Beautiful & inspiring words. Not a day goes by that we don’t think of you all ❤️. Sending our love always.