There is only one reason I am writing tonight, and that is to share the good news that the results of the LP came back and Caleb’s CSF (Cerebrospinal fluid) came back negative. This means there were no cancerous cells found in his spinal fluid. He continues to show no evidence of disease!!! Every time the doctor gives us good news I can literally feel my body let out a sigh of relief. I am so thankful for this today!
We also talked with Caleb’s doctor about the best time to start the next cycle and we are going to wait until Friday. His doctor would like to see if his counts stay strong without any transfusions, and also give Caleb’s body a little more time to recover. He said if kids are critical, and are showing signs of disease, we wouldn’t have this luxury. But since Caleb’s scans and LP all came back clean he doesn’t want to burn out his body and bone marrow and make the next 3 cycles even harder on him. We’ll give him a few more days to recover and start Cycle 3 on Friday.
We ended our night with the “Chicken Store” for dinner followed by some fort building. Daddy played the Zombie attacking their fort and you should have heard their screams/giggles. They just thought it was the funniest thing ever and built many different versions of their Zombie protection fort. Great night after some great news!!
More updates later this week as we start Cycle 3!