We are almost a week past finishing chemo and Caleb’s counts are dropping as expected. It’s hard to say whether he has hit the bottom yet, but I think we are close. So that means after we hit rock bottom, it’s only up from there!

He’s had a slight runny nose and small cough, but no fever over the weekend so it doesn’t seem like anything major. We are trying as hard as we can to stay out of the hospital! We had a pretty low key weekend. Actually I don’t think Tyler or Caleb left the house all weekend. Caleb’s ANC was only 110 on Friday so it wasn’t safe for him to go anywhere, especially during cold and flu season! So we played at home and just had a good “family weekend”.

I was getting concerned about Caleb’s numbers starting Sunday afternoon/early evening because I could tell he didn’t have a lot of energy. I am glad we had a count check this morning (Monday). His Platelets were only 18, so he needed a platelet transfusion. His Hgb is low, but wasn’t low enough for a transfusion today, so that may be needed later this week. Caleb was so good and patient as always. As soon as Paige, the child life specialist, heard we had to stay she brought him a new toy and Play-doh. This helped pass the time until he got sleepy from his meds and wanted to relax.

We will come back Thursday for another count check to make sure he doesn’t need any more transfusions. I hope not, but I’m thinking if we need one more transfusion this round that could be the last one!!! His ANC was already up to 330 today (from 110 Friday) so we *might* be turning the corner already. Thursday’s counts will tell us more. I feel a huge weight being lifted off my shoulders every time we do the “last” of something, and get one step closer to the end!

When Caleb doesn’t feel well he likes to sleep in our bed, and as hard as that is sometimes for James and I, how cute does he look when he sleeps!? We can’t say no to that sweet face. I love him so much!




8 thoughts on “ROAD TO RECOVERY

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  1. Sending positive thoughts to all of you!!!!!!!!!! You have an amazing family. I just love reading the updates. GO CALEB!!! YOU GOT THIS BUDDY!!!!!

  2. Sending positive thoughts to all of you. Love reading the updates. Such an amazing family. GO CALEB!!!!! YOU GOT THIS BUDDY!!

  3. God bless our beautiful Caleb. We all love him so much. Prayers as always for him tonight. 🙏🙏🙏

  4. What a special family and the coolest toys ever. He would probably sleep in my bed every night with that face. Prayers for complete healing.

  5. Hope all goes well right here at the end or anytime that is. 🙏🙏🙏🙏🙋‍♀️❤️❤️❤️❤️

  6. Caleb is such a strong little man !
    And I know he gives his family the strength to keep on going! May God bless him for this to be the last of a new Beginning!

  7. Praise God , Sweet Caleb.
    I am so happy you are getting well.
    Soon you will be “All Better.”
    I pray for you everyday.

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