There is only one reason I am writing tonight, and that is to share the good news that the results of the LP came back and Caleb's CSF (Cerebrospinal fluid) came back negative. This means there were no cancerous cells found in his spinal fluid. He continues to show no evidence of disease!!! Every time... Continue Reading →


The last few days have been very busy! Our schedule has been all over the place, and many things have been falling into place last minute since the next move in Caleb's treatment always depends on his blood counts. We spent all of Saturday and the first part of Sunday having fun with Grandma and... Continue Reading →


I know James updated everyone a few days ago, so I'll pick up from there. Grandma is in town!!! She can only stay a few days this time around but we are so glad she is here! Caleb had his MRI on Valentine's Day morning. This is one of the only procedures at St. Jude... Continue Reading →


A lot has happened in the last few days! A lot of good things, actually mostly good things... but also a couple things that gave us a major reality check and reminded us once again that we have no control over this life. So, we'll start with the good. Aunt Taylor spent the WHOLE weekend... Continue Reading →


We were able to have 2 days at home with no appointments before going in today to check his blood counts. We have been bracing ourselves for the downward turn after the chemo when his counts usually drop and he sleeps a lot. But, it hasn't happened yet. He has been full of energy and... Continue Reading →


We are back home, and the inpatient part of Cycle 2 is now behind us. Caleb handled it all very well, but was definitely happy to be back home today too! When the doctors came for their rounds this morning, their initial plan was to discharge him today but keep him on hydration fluids. This... Continue Reading →


So, let's see... the last 2 days have pretty much been the same routine each day. He was given Mesna and Cyclophosphamide about 5am each morning. The rest of the day he has just been hooked up to the saline for hydration. On top of that he is on a rotation of Zofran, Benedryl and... Continue Reading →


Today had it's ups and downs, but we are finding our groove with this inpatient thing. This morning at 5am Caleb started his second round of chemo. They started with Vincristine. This is a 5 minute gravity fed drip, so it goes pretty quickly. Then they started the Cisplatin. This is administered through his port... Continue Reading →


Tonight I am writing this blog post from a hospital room at St. Jude. Caleb's ANC rose significantly from Tuesday. It went from 400 to 1500 in just a few days!  That's normal range!! It hasn't been that high in a while so I was thrilled. Leading up to today we have enjoyed some time... Continue Reading →

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