Tonight I am writing this blog post from a hospital room at St. Jude. Caleb's ANC rose significantly from Tuesday. It went from 400 to 1500 in just a few days!  That's normal range!! It hasn't been that high in a while so I was thrilled. Leading up to today we have enjoyed some time... Continue Reading →


First, I am writing this post tonight from our apartment and not the hospital where I thought we would be. Caleb's ANC was too low to be admitted today, and we are going to recheck numbers again on Friday. His ANC must be above 500, and it was only 400 today. The doctor was not... Continue Reading →


Just a quick update on the 3 appointments we had today. Today's appointments were "fun" appointments as we tell Caleb. That means they are appointments where he doesn't have to get poked, or go to sleep, or do anything unpleasant. We started our day with a follow up with the Neurology department. This doctor is... Continue Reading →


It's been a good few days since my last blog post, so I thought I'd give everyone an update on what's been going on. For the last 7 days Caleb has been getting his oral chemo at home. This cycle we were able to give it to him at night which has worked out so... Continue Reading →


We went to St. Jude yesterday for more blood work and got the news that Caleb's ANC was up enough to start the next round of Chemo. It was at 900, which still isn't great but is strong enough to start Cycle 2. Cycle 2 will go exactly as Cycle 1 did, so we started... Continue Reading →


We've had an exciting couple of days since Caleb came home from his hospital stay. James and I did what we thought would be impossible... we snuck away to Nashville!!! A couple months ago James bought tickets to a concert in Nashville. But not just any concert, a benefit concert put on by Bobby Bones... Continue Reading →


I am happy to report that we are home! This morning we got the great news that his ANC count is up to 200 and he hasn't had a fever, so we were clear to go home! I can't believe that we ended up 5 nights inpatient but I was so thankful to go home!... Continue Reading →


With this morning marking our 5th day inpatient, we have officially been here longer to treat his fever than we were for his Chemotherapy treatments. At this point we may never know exactly what caused the fevers, however we have learned so much from this experience about how the smallest thing can become a serious... Continue Reading →


We are still inpatient at St. Jude waiting for Caleb to feel better and for his counts to recover a little bit before we can go home. There were really no major developments today. He looked like he was feeling better this morning, but then started to feel worse. Basically his temp rises and drops,... Continue Reading →

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