Schedule

We are sharing our treatment schedule with you so you know the times we may need a little extra love, the times where Caleb will likely be the sickest, the times where Caleb is most vulnerable to infections/fevers and the times when we will be celebrating another completed round of treatment!

Please note, the recovery days we have listed below are the most vulnerable times for Caleb. These are the days where his white and red blood cell counts will be VERY low, he will require blood transfusions each cycle to get them back to normal and he will be VERY cisceptable to infection and fevers. A half a degree fever is considered a medical emergency and will require immediate hospitalization. Absolutely no one who is sick can be around him during this time, he will not be able to go to any crowded places and will need to have everything cleaned and sanatized!

If you are able to come visit us here in Memphis please understand you will have to have your flu shot at least a week prior, be sure you are not sick (lots of Vitamin C) and wash, sanatize your hands during each visit! We greatly appreciate your understanding and support of this request!

Here is a Detailed View of the Current Treatment Schedule (See the Calendar below for detailed information on each Treatment Cycle):

  • 9/17/18 – 9/28/18 (COMPLETE!):
    • Treatment planning, mapping and assessments
  • 10/3/18 – 11/13/18:
    • 6 cycles, 5 days per cycle, 1.5 hours per day
    • 10/3 – 10/19
      • 3 Cycles of Whole Brain / Whole Spine Radiation Treatment (the most dangerous of all the treatment he will have)
    • 10/22 – 11/13
      • 3 Cycles of targeted “Boost” radiation directly to the tumor site
  • 12/6/18 – 12/7/18:
    • Post Radition MRI – This is one of the most important scans Caleb will have as it will tell us immediately if there is any additional growth during radiation treatments.
    • Post Radiation Spinal Tap – The second of many spinal taps to ensure there are no free floating cancer cells in his spinal fluid (referred to as Metastisized)
  • Chemotherapy Treatment (5 Cycles, 35 days per Cycle):
    • 12/11/18 – 1/14/19: Chemo Cycle 1
      • 12/11 – 12/17: Cycle 1 Step 1 – Alisertib
      • 12/18 – 12/24: Step 1 Recovery
        • These recovery days are where Caleb is most vulnerable to infections, fevers and hospital visits as his red and white blood cell counts will be very low as he recovers from each type of Chemo.
      • 12/26 – 12/29: Cycle 1 Step 2 – Hospitalization – Cisplatin, Vincristine, Cyclophosphamide Chemo Therapy
        • Every 15 – 18th day of each cycle, Caleb will be hospitalized to receive the 2nd and 3rd Chemo Therapy drugs due to how long it takes them to circulate in his system.
        • 12/25 – Cisplatin & Vincristine Chemo Therapies (Yep day one is on Christmas day)
        • 12/26-12/27Cyclophosphamide Chemo Therapy
        • 12/29 – Optional in hospital recovery day / discharge day
      • 12/29 – 1/2/19: Cycle 1 Step 2 Recovery Days WE ARE HERE!
      • 1/2/19: Cycle 1 Step 3 – Vincristine Chemo Therapy
        • This is a one day in patient Chemo Boost before the last recovery period.
      • 1/3/19 – 1/15/19: Cycle 1 Step 3 Recovery
        • This is the last recovery period of the cycle before we start all over again in the next cycle.
        • This is again a very vulnerable time for Caleb where his white and red blood cell counts will be low, he will require blood transfusions to get them back to normal and he is VERY cisceptable to infection, fever and more hospitalization.
        • A half a degree fever is considered a medical emergency and will require immediate hospitalization. Absolutely no one who is sick can be around him during this time, he will not be able to go to any crowded places and will need to have everything cleaned and sanatized!
    • 1/16/19 – 2/20/19: Chemo Cycle 2
      • 1/16 – 1/22: Cycle 2 Step 1 – Alisertib
      • 1/23 – 1/30: Cycle 2 Step 1 Recovery
      • 1/31 – 2/3: Cycle 2 Step 2 – Hospitalization – Cisplatin, Vincristine, Cyclophosphamide Chemo Therapy
        • 1/31 – Cisplatin & Vincristine Chemo Therapies
        • 2/1 – 2/2 Cyclophosphamide Chemo Therapy
        • 2/3 – Optional in hospital recovery day / discharge day
      • 2/4 – 2/7: Cycle 2 Step 2 Recovery Days
      • 2/7: Cycle 2 Step 3 – Vincristine Chemo Therapy
        • This is a one day in patient Chemo Boost before the last recovery period.
      • 2/8 – 2/20: Cycle 2 Step 3 Recovery
        • This is the last recovery period of the cycle before we start all over again in the next cycle.
    • 2/21/19 – 3/28/19: Chemo Cycle 3 (Schedule Subject to Change beginning here post Cycle 2 schedule)
      • 1/20 – 2/26: Cycle 3 Step 1 – Alisertib
      • 1/27 – 3/5: Cycle 3 Step 1 Recovery
      • 3/6 – 3/9: Cycle 3 Step 2 – Hospitalization – Cisplatin, Vincristine, Cyclophosphamide Chemo Therapy
        • 3/6 – Cisplatin & Vincristine Chemo Therapies
        • 3/7 – 3/8 Cyclophosphamide Chemo Therapy
        • 3/9 – Optional in hospital recovery day / discharge day
      • 3/10 – 3/14: Cycle 3 Step 2 Recovery Days
      • 3/14: Cycle 3 Step 3 – Vincristine Chemo Therapy
        • This is a one day in patient Chemo Boost before the last recovery period.
      • 3/15 – 3/27: Cycle 3 Step 3 Recovery (HAPPY BIRTHDAY CALEB and DAD!)
        • This is the last recovery period of the cycle before we start all over again in the next cycle.
    • 3/11/19:
      • MRI and Spinal Tab #2
    • 3/28/19 – 5/2/19: Chemo Cycle 4
      • 3/28 – 4/3: Cycle 4 Step 1 – Alisertib
      • 4/4 – 4/10: Cycle 4 Step 1 Recovery
      • 4/11- 4/14: Cycle 4 Step 2 – Hospitalization – Cisplatin, Vincristine, Cyclophosphamide Chemo Therapy
        • 4/11 – Cisplatin & Vincristine Chemo Therapies
        • 4/12 – 4/13 Cyclophosphamide Chemo Therapy
        • 4/14 – Optional in hospital recovery day / discharge day
      • 4/14 – 4/18: Cycle 4 Step 2 Recovery Days
      • 4/18: Cycle 4 Step 3 – Vincristine Chemo Therapy
        • This is a one day in patient Chemo Boost before the last recovery period.
      • 4/19 – 5/1: Cycle 4 Step 3 Recovery
        • This is the last recovery period of the cycle before we start all over again in the next cycle.
    • 5/2/19 – 5/2/19: Chemo Cycle 5
      • 5/2 – 5/8: Cycle 5 Step 1 – Alisertib
      • 5/9 – 5/15: Cycle 5 Step 1 Recovery
      • 5/16 – 5/19: Cycle 5 Step 2 – Hospitalization – Vincristine, Cyclophosphamide Chemo Therapy
        • Note that Cisplatin was removed from the list during this cycle as it can begin harming the hearing after 4 cycles.
        • 5/16 – Vincristine Chemo Therapies
        • 5/17 – 5/18 Cyclophosphamide Chemo Therapy
        • 5/19 – Optional in hospital recovery day / discharge day
      • 5/19 – 5/23: Cycle 5 Step 2 Recovery Days
      • 5/23: Cycle 5 Step 3 – Vincristine Chemo Therapy
        • This is a one day in patient Chemo Boost before the last recovery period.
      • 5/24 – 6/6: Cycle 5 Step 3 Recovery
        • This is the last recovery period of the cycle before we start all over again in the next cycle.
  • 6/11/19:
    • MRI and Spinal Tab #3
  • 6/7/19 – 6/30/19:
    • White and Red Blood Cell Count Recovery Buffer (If Caleb’s counts don’t come up properly after each cycle of Chemo the “recovery” periods could be longer than listed above)
  • 7/1/19:
    • END OF CHEMO PARTY AT ST. JUDE!!!!!!
    • LET’S GO HOME!!!!
  • 7/1/19 – 12/31/19:
    • At Home Chemotherapy (6 Cycles at 28 Days per Cycle)
  • 9/11/19:
    • Visit to St. Jude for MRI and Spinal Tab #4
  • 12/11/19:
    • Visit to St. Jude for MRI and Spinal Tab #5
  • 1/1/2020:
    • END OF CALEB’S TREATMENT, REMISSION TIME!!!!!!
  • 3/11/20:
    • Visit to St. Jude for MRI and Spinal Tab #5
  • 6/11/20:
    • Visit to St. Jude for MRI and Spinal Tab #6
  • 9/11/20:
    • Visit to St. Jude for MRI and Spinal Tab #7
  • 12/11/20:
    • Visit to St. Jude for MRI and Spinal Tab #8
  • 3/11/21:
    • Visit to St. Jude for MRI and Spinal Tab #9
  • 6/11/21:
    • Visit to St. Jude for MRI and Spinal Tab #10
  • 9/11/21:
    • Visit to St. Jude for MRI and Spinal Tab #11
  • 12/11/21:
    • Visit to St. Jude for MRI and Spinal Tab #12

***NOTE: This schedule is only approximate and could change at any time***

 

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Radiation Therapy: 10/1/18 – 11/10/18 10:00 am
Radiation Therapy: 10/1/18 – 11/10/18 @ St Jude Children's Researh Hospital
Oct 1 @ 10:00 am – Nov 9 @ 12:30 pm
Caleb’s Current Radiation Treatment Plan: 6 Cycles (7 days per cycle) 5 days of treatment per week (weekdays only) for a total of 30 treatments 2 days of rest per treatment (weekends) 1.5 Hours Per... Continue Reading →
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3 thoughts on “Schedule

Add yours

  1. Thoughts prayers and encouragement to this little hero. God bless you. Be strong and conquer the world Caleb. You can do this and more. Positive vibes and prayers your way🙏🙏🙏🙏

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